So it went a little something like this…
At the endocrinologist office today…
All of the routine stuff of vitals being taken, then I was shown to my room. A room with paper thin walls. The thin walls helped ease my fears of this big mean dr.
I could hear him chatting with his patients, I could hear him stop and listen when he asked them a question, then he responded with real answers.
This won’t be so bad after all, I thought to myself as I stared at pumpkin puréed orange walls decorated with invisible art.
Then came the knock and a friendly smile and introduction.
He flipped through my chart & then binder of tests and results. Chatting occasionally.
Bottom line is that his office is not equipped to do the diagnostics that need done to get an exact diagnosis of Primary Adrenal insufficiency or Secondary Adrenal Insufficiency. In addition to I have so many other illnesses… He said he cannot confidently treat me.
I am now being sent to a Bigger Endocrinologist clinic in Dallas, where they have the equipment for testing and the safeguards in case I go into crisis during testing.
The doctor told the receptionist to refund my money, he apologized that he couldn’t help me.
He was a nice guy, I appreciate the honesty he had with me about everything (including how he felt about me being put on steroids before a Stim test.)
Can you believe he gave me a refund?!?!
I’ll know next week sometime about when the next appointment will be.
Also brought to my attention, to bring to my doctors attention is the diagnosis of “multi-system degeneration of the autonomic nervous system” and if that is a true & accurate diagnosis why it is not being treated. That should be high on the priority list because that one is progressive. Wait what?!?! Did I forget that diagnosis? I looked it up—- I wouldn’t have forgotten the importance of that. Or did I purposely block it out.
So that’s how it went. Not so bad after all. Yes a bit like starting over but it should have been done like this years ago when I was diagnosed.